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What are your views of self diagnosis?

Thanks for your post, I'm learning a lot from it. I can see that you and your wife are doing a great job as parents. I love my kids in a way so intense that I don't think other parents experience this feeling in the same way, not even close. But I have the feeling that you know what I mean, and that you love them with the same intensity. Oh well, I, too, wandered a little bit far from the subject, sorry.
 
I support both decisions, after hearing about Asperger, i researched it a little, I worked with a lot of children who were at different places on the spectrum and diagnosed my children an myself. Initially I worried about sending them to school with any kind of diagnosis, but after seeing a family struggle with their child and the school to get help from the school I started to pursue an evaluation for my daughters. They were diagnosed two years ago. I wasn't going to have myself evaluated by my daughters are supportive of it, and I m hoping with an offical diagnosis my co workers might be able to perceive that my short coming are intentional, though I don't expect any empath. At the very least I can give them more experience with those who different.
 
I'm self diagnosed as the symptoms are a fit in more ways than one. I'll pursue a formal diagnosis later this year.

I celebrate what I have found, for it has been a life long journey - it is a relief.

Luckily, nobody can take anything away from who I am.
 
I wish there had been more awareness on the subject when I was growing up. My life might have been less anxiety ridden if there had been professional help instead of parents who were in denial that there was no way I could have any type of the dreaded words 'psychiatric conditions'. (too much stigmatism then) Looking back if I had understanding of my problems and a professional to talk with about my concerns, who knows, maybe I would have been more comfortable or even wanted to break away even a little bit from the security of just staying at home with my parents with everything I did do like work for example or driving which had to be in my narrow safety zone.
(agoraphobia). Even if I chose to live my life solitary and only be close to my parents, some professional pointers might have made my current sudden transition into the world alone without my security blankets as I call them, somewhat easier.
I don't like the labels either and doctors (most of them) do need to be caring to be helpful IMO.
 
In order to properly decide on an answer you first need to ask what do you need from a diagnosis.

I believe that if you want medical help, educational help or financial support from the state then pretty much you will need an accredited diagnosis such from a medical doctor or specialist psychologist.

If not then I see no problem with people self diagnosing themselves. Take the Baron Cohen AQ test, take the RAADS-R test and see what they say.

I see no value in separate the medical diagnoses from the self diagnoses as this just sets up Us vs Them.

If it helps you in your daily life then its all good man. :D:cool:
 
I see no value in separate the medical diagnoses from the self diagnoses as this just sets up Us vs Them.

If it helps you in your daily life then its all good man. :D:cool:

I agree. It might not have the official "clout" of a professional diagnosis, but the day I learned I had it was the day I started coping better.
 
Thanks for your post, I'm learning a lot from it. I can see that you and your wife are doing a great job as parents. I love my kids in a way so intense that I don't think other parents experience this feeling in the same way, not even close. But I have the feeling that you know what I mean, and that you love them with the same intensity. Oh well, I, too, wandered a little bit far from the subject, sorry.

Thank You. Yes, we love our children much. We appreciate them for who they are, and daily show that. That's why too we are willing to take on more powerful persons, with attempts to make system changes, from both-in person contacts with these entities, through business letters, and recently through a book

I can see you are a great mother, from not only the things you say but your feelings and attitude. Your husband is likely the same, from the very little I read so far, and doing his best as well. This does not mean we cannot have some days we are not feeling well, but if we are constantly trying to learn new things and appreciating the little things, this helps a lot.
 
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I wish there had been more awareness on the subject when I was growing up. My life might have been less anxiety ridden if there had been professional help instead of parents who were in denial that there was no way I could have any type of the dreaded words 'psychiatric conditions'. (too much stigmatism then) Looking back if I had understanding of my problems and a professional to talk with about my concerns, who knows, maybe I would have been more comfortable or even wanted to break away even a little bit from the security of just staying at home with my parents with everything I did do like work for example or driving which had to be in my narrow safety zone.
(agoraphobia). Even if I chose to live my life solitary and only be close to my parents, some professional pointers might have made my current sudden transition into the world alone without my security blankets as I call them, somewhat easier.
I don't like the labels either and doctors (most of them) do need to be caring to be helpful IMO.

I had the same growing up. My parents were in denial of any problem in us, even when we looked abnormally scared around them and did not talk. Back then during that era everything was a secret. It did not help our parents had conditions of their own. That clouded their judgment as well. Taking us for any mental health treatment was not even an option, as they themselves refused to go.

Heck, even the school system did not care. They turned an eye on us. You would think that if we could not speak but a wavering yes or no on rare instances, and looked down and away all the time and avoided all contacts that would throw up red flags to just look a tiny bit deeper. No teacher ever approached me and asked if I was ok. They turned their eyes away from bullying and scandals then too.

I am not sure how any formal diagnosis back then would have impacted me when I was a small child, as I was not diagnosed until my mid twenties with social anxiety disorder. I suppose I would personally have had some relief that I was not facing this struggle alone, and knowing I was not weird but had some condition that explained my behaviors, and that I was not the cause.

At that time we did not have internet, but regardless, I was too lacking of any confidence then to do anything to help myself. Once my parents learned my diagnosis much later, of course they basically said, 'It is all made up. It is in your head.' Unfortunately, yes, they were either a bit ignorant, apathetic or self-centered, to say that, and to think they played no part in that prior lifetime of severe anxiety.

But, to be positive, I learned lots of what not to do from watching and listening to my parents and others, and from analyzing myself and societal members. This gave me strength and a sense of purpose. In that regard I was never a follower, but wanted to start leading, even at an early age. Being so quiet and introspective, and empathetic, helped me focus on details and issues that most miss.
 
I had the same growing up. My parents were in denial of any problem in us, even when we looked abnormally scared around them and did not talk. Back then during that era everything was a secret. It did not help our parents had conditions of their own. That clouded their judgment as well. Taking us for any mental health treatment was not even an option, as they themselves refused to go.

Heck, even the school system did not care. They turned an eye on us. You would think that if we could not speak but a wavering yes or no on rare instances, and looked down and away all the time and avoided all contacts that would throw up red flags to just look a tiny bit deeper. No teacher ever approached me and asked if I was ok. They turned their eyes away from bullying and scandals then too.

I am not sure how any formal diagnosis back then would have impacted me when I was a small child, as I was not diagnosed until my mid twenties with social anxiety disorder. I suppose I would personally have had some relief that I was not facing this struggle alone, and knowing I was not weird but had some condition that explained my behaviors, and that I was not the cause.

At that time we did not have internet, but regardless, I was too lacking of any confidence then to do anything to help myself. Once my parents learned my diagnosis much later, of course they basically said, 'It is all made up. It is in your head.' Unfortunately, yes, they were either a bit ignorant, apathetic or self-centered, to say that, and to think they played no part in that prior lifetime of severe anxiety.

But, to be positive, I learned lots of what not to do from watching and listening to my parents and others, and from analyzing myself and societal members. This gave me strength and a sense of purpose. In that regard I was never a follower, but wanted to start leading, even at an early age. Being so quiet and introspective, and empathetic, helped me focus on details and issues that most miss.
It is true. Focusing on details that most miss is a definite positive. I know what you mean, I was never a follower either regardless of the above mentioned aspects of being an Aspie but not knowing it.
I remember the school years and bullying.
It was caught once by the school social worker and Mom was called in for a meeting. She advised her to at least go for some mental health counseling with me, which fell on deaf ears.
I saw my psychologist today and told her about this discussion here on diagnosis. She agrees with the need for a professional diagnosis scoring if you need it for a reason. Other wise the on-line AQ / EQ tests and RAAD-S are fine for self learning purposes. Also she said just interviewing with a qualified psychiatrist or psychologist with a specialty in autism is good. They know the signs and questions to ask without a long paper test.
 
When I was trying to find the diagnostic center in an unfamiliar town, and my onboard navigation wasn't working, I had to call and let them "talk me in."

When I arrived I announced, "Inability to handle complicated verbal directions: one point!"
 
It is true. Focusing on details that most miss is a definite positive. I know what you mean, I was never a follower either regardless of the above mentioned aspects of being an Aspie but not knowing it.
I remember the school years and bullying.
It was caught once by the school social worker and Mom was called in for a meeting. She advised her to at least go for some mental health counseling with me, which fell on deaf ears.
I saw my psychologist today and told her about this discussion here on diagnosis. She agrees with the need for a professional diagnosis scoring if you need it for a reason. Other wise the on-line AQ / EQ tests and RAAD-S are fine for self learning purposes. Also she said just interviewing with a qualified psychiatrist or psychologist with a specialty in autism is good. They know the signs and questions to ask without a long paper test.
It is true. Focusing on details that most miss is a definite positive. I know what you mean, I was never a follower either regardless of the above mentioned aspects of being an Aspie but not knowing it.
I remember the school years and bullying.
It was caught once by the school social worker and Mom was called in for a meeting. She advised her to at least go for some mental health counseling with me, which fell on deaf ears.
I saw my psychologist today and told her about this discussion here on diagnosis. She agrees with the need for a professional diagnosis scoring if you need it for a reason. Other wise the on-line AQ / EQ tests and RAAD-S are fine for self learning purposes. Also she said just interviewing with a qualified psychiatrist or psychologist with a specialty in autism is good. They know the signs and questions to ask without a long paper test.

Yes, I feel that psychologist was right about her two recommendations, as we have done both, and both methods helped a lot. Dylan was finally evaluated as having Autism by a psychologist that specialized in Autism, after the twelve other nonspecialists in Autism refused to diagnose, or gave general diagnoses. However, we had to drive four hours away to see this person as no such specialists existed in our area.

And for those who do not need formal diagnostics, yes, those on this board can learn through various online testing, and through other research, too, if it is their desire to see if they could have a certain condition. If all the other doctors or medical professionals seem in no hurry to diagnose, or not able or willing to diagnose, by all means we have that right to do such. There is no law against it.

One children's story that reminded me of myself as a very young student and boy, and which your post and a few relating ones talked about, was the story "Violent" by Carl Best. The girl was very shy and teased a lot at school, yet she had so many wonderful abilities. And she could pick up so many other details that others missed by using her insight and senses to the fullest, by watching and analyzing.
 
When I was trying to find the diagnostic center in an unfamiliar town, and my onboard navigation wasn't working, I had to call and let them "talk me in."

When I arrived I announced, "Inability to handle complicated verbal directions: one point!"

We bought one Garmin navigation device and it was awful. It kept taking us down seasonal dirt roads, as our area has lots of those. The device did not understand that we wanted the shortest safe route. It thought we wanted only the shortest route.

Often those seasonal roads would end and in order to get to the destination our car would have had to swim through a small pond or lake at the road end, or we would have had to keep driving through a forest where that dirt road became narrower and turned to a dirt path and which would come to an end.
 
We bought one Garmin navigation device and it was awful. It kept taking us down seasonal dirt roads, as our area has lots of those. The device did not understand that we wanted the shortest safe route. It thought we wanted only the shortest route.

Gosh, that's like my area with all those seasonal roads!

I was using Ford's Sync system. Some places it would work with pinpoint accuracy; others it would dump me in the middle of a town and declare "you have arrived at your destination."

When Ford discontinued it I was upset, because it was better than nothing, but this led me to getting cell service on my iPad. Using the Map app from Google works incredibly well. I can load it in an area where I can get a signal, and so far, it guides me properly even with no signal. And in my rural area, that's often.

It seems to download a map of the whole area once I trigger the verbal directions part, so if I take a wrong turn, it updates itself. I can also view where I am at all times and take an alternate route if that looks better. In my long drives for work, I listen to podcasts, and the Map app pauses them while telling me about an upcoming turn.

This really was an upgrade, and I can use it in a car that isn't my own, too.
 
I am all for embracing self-diagnosis. So far, I have encountered several doctors who don't know much about autism, and therapy sessions with a specialist is just too expensive for me at this time. I agree with a lot of you here, and also see fewer and fewer benefits to "official diagnosis" other than clinical confirmation. I will probably continue to seek alternative resources but at this time, I'll stick to my gut and personal research.
 
I am all for embracing self-diagnosis. So far, I have encountered several doctors who don't know much about autism, and therapy sessions with a specialist is just too expensive for me at this time. I agree with a lot of you here, and also see fewer and fewer benefits to "official diagnosis" other than clinical confirmation. I will probably continue to seek alternative resources but at this time, I'll stick to my gut and personal research.

I agree that especially the traditional general doctors, pediatricians and family doctors know little about Autism, as seen by their lack confidence and ability in testing for such, and unwillingness to evaluate for such.

A psychologist or psychiatrist trained to evaluate Autism is ones best bet, followed by a neurologist. The school system will evaluate younger children, too, for those wanting that for their children.

For treatment, we preferred alternative treatment in the past, as numerous traditional treatments for our Autistic children when they were younger went nowhere. Since the last year we have just focused mostly on letting our children be themselves, appreciating that, and guiding them to be their best, without comparison to others.
 
The problem with an official diagnosis is how it is still more "art than science." All kinds of clueless professionals act like fools about it. Like I have great social skills and eye contact for an NT. If I had not sought out a specialist in diagnosing females I might not have "made the cut." I would still be baffled about the mystery illness that has been making me variably functional for the last five years.

That is the bottom line for me. I had self-diagnosed myself with utter confidence, and then what I did that was supposed to help Aspies, worked.

Self diagnose and self treat. Go ahead. It's not like there are so many people really qualified to help, sadly.
Too late for any help at 51. ..

Even if given official dx. thanks for the help doctor. You were faked by my mimiced behavior. Maybe I should ask if i can sit in your chair and spin around.
 
Too late for any help at 51. ..

Even if given official dx. thanks for the help doctor. You were faked by my mimiced behavior. Maybe I should ask if i can sit in your chair and spin around.

Welcome to the forum, and welcome to the age 51 club, though my wife and kids think I look and act much younger than that. You would think two smaller children with Autism would age me quicker, but I guess they bring out my youth.

How about instead asking the doctors to sit in the chair and spin them around, to see if by getting dizzier they could change up their policies, principles and procedures? Or maybe it would start causing them to think, analyze and feel more?

For making our Autistic sons wait in their tiny exam room often for twenty to thirty minutes before being seen, we let our 7-year old son spend that time spinning their stools, climbing up on the counter, using up their soft soap, and dropping tongue depressors in the garbage.
 
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Fortunately, I am a research fiend, and this has shifted into Warp Drive thanks to the Internet.

I have tried a weighted blanket, binaural programming, and now anticipating a mini-trampoline in the next week or so. All scientific strategies that my local medical people know nothing about.

If I waited for authority to help me, I would wait forever.
 

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