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Update

Streetwise said:
The problem is okrad gp's oftenknow
Click to expand...
Second part ( i hate my phone ) nothing apart from a few months training at medical school unless they specialise
even an AUTISM team was very close to me
not being autistic
my mam(mother ) diagnosed herself with pseudo bulbar palsy motor neurone disease ,we were both in shock angry had no idea what it meant until the neurologist said after four minutes m.n.d
i know the gp's i see think Im a nuisance HYPOCHONDRIAC but the referral and diagnosiswerent degrading
my mothers gp had seen 3 people in 30 years with mnd
problem is physical medicine is still poking around in the dark
so many people DONT WANT to practice as therapists so its means generalised suffering for people
in the UK its the worst its been talk to us
i get my inbearable days but ive perceived that Im not dead death frightens me
 
Streetwise said:
Second part ( i hate my phone ) nothing apart from a few months training at medical school unless they specialise
even an AUTISM team was very close to me
not being autistic
my mam(mother ) diagnosed herself with pseudo bulbar palsy motor neurone disease ,we were both in shock angry had no idea what it meant until the neurologist said after four minutes m.n.d
i know the gp's i see think Im a nuisance HYPOCHONDRIAC but the referral and diagnosiswerent degrading
my mothers gp had seen 3 people in 30 years with mnd
problem is physical medicine is still poking around in the dark
so many people DONT WANT to practice as therapists so its means generalised suffering for people
in the UK its the worst its been talk to us
i get my inbearable days but ive perceived that Im not dead death frightens me
Click to expand...

Yes, we are still alive! :)
And you just nailed why I am trying to get the PD label off. GPs don;t know jack. about them. When they see PD, they don't say, "Hmmmm, I wonder if this is the benign Cluster A or maybe CLuseter C or D?" No, they think BOrderline which I do not have.

The Dr did me a great disservice. Our family is now is chaos all over again with everyone mad all the time now.
 
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