I have no idea where to start really. I am here to seek guidance in how to deal with my un-diagnosed 11 year old son. I noticed early on, at the age of 2 that he wasn't hitting his milestones on time, and his speech was delayed. So he received extensive early intervention therapy, speech therapy, occupational therapy through the regional center in Southern California. At the age of 3 he received his first Autism evaluation. His results were "inconclusive" and he received a shotty diagnosis of PDD-NOS. Which left him losing all support services from the regional center a pushed into the school system. It was suggested that I take him to UCLA to have him officially diagnosed. There he would undergo a battery testing and evaluations. Being very young, unemployed single mother I could not afford the 1,700 price tag. Kaiser also did their own evaluation and gave him a diagnosis of ADHD at the age of 5.
At my wits end in getting assistance from Kaiser (who at the time did not provide AST therapy, and the regional center) I took him back to the regional center because of his increased melt downs at school and behavior issues. At the regional center he was then evaluated again for Autism. His diagnosis of ADHD was confirmed, but because he was very interactive, charming, smart, and social they could not diagnose him with Autism, or aspergers because his symptoms ''weren't severe enough'' even though he still displayed an incorrect hand grasp, stutter, and letter from his teacher explaining his melt downs, triggers, and behaviors. Somehow I knew my son fell in between the gap of me being able to get him the help he needed. So I honestly just gave up in trying to find answers. I know just by being around my son for the last 11 years that he falls on the spectrum. Maybe not severely like some, but the signs and characteristics are there. And not being able to get him the help he really needs, or a real diagnosis has been frustrating. He now takes Adderall for his ADHD an anti-depressant for anxiety, and a sleeping medication.
Just like many other people that fall on the spectrum, my son is obsessed (or was obsessed) with playing video games. He started expressing very negative behaviors like hitting himself, pulling his hair, and frequently melting down while playing online mutliplayer video games. So of course, he had to have his video games regulated. I'd say in the past year, he made great progress in behavior and his academics are at an all time high. However this past week, he had a very bad day at school, where he expressed a more volatile type of behavior towards his teacher and an aide in the same day. His history with his teacher has been questionable one in my eyes. I have always felt like shes never liked him and has singled him out in a lot of altercations with other students in his special day class. I had to have a meeting called once with the Principle and superiors at school because he came home in tears because how he described it "the kids were receiving ice cream for expressing good behavior, if you got 2 or more reflections they were not included in the incentive" my son told me that his teacher pulled him to the side, sat him along a wall and told him ''you aren't getting any ice cream because you are the worst behaved student in the class".
During the meeting I stood behind my sons claims. I never seen him that upset. But the school stood behind the teacher, saying that children with disabilities often "make up stories" basically saying my son was lying. I often question if she's Autistic herself, as when she greets you she won't shake your hand, doesn't make eye contact. That's a whole other story, but knowing that people on the spectrum need lots of detailed information, I'm trying to explain what I need to to give you an idea of what I'm dealing with without writing a 10 chapter autobiography on my son.
Going back to his recent incident. WhenI got home as soon as I walked in he approached me right away and told me in pieces what had happened. He said he had "made a huge mistake, but everyone makes mistakes so lets just get over it. Wanting to find out what really happened I asked for his reflections, one being that he thought the teacher gave him extra math problems (which wasn't the case they were for a different group of students.) This caused him to aggressively get into his teachers face, scream at her and tell her "I'm not afraid of you". The second reflection was in the library. I guess another student had a book he wanted to read so he melted down over not being able to read the book he wanted and he threw another book in the library at an aide trying to get him to calm down. Thins honestly was very alarming to me. I tried explaining to him that this, under any circumstance is an unacceptable way of behaving. He tried to pass it off as him behaving badly because he forgot to take his Adderall in the morning. However there had been many other days where he either decided to skip his med , or forgot to take it and he didn't act so very badly at school. To my son, even when I just raise my voice a bit "I am yelling at him''. I simply just wanted him to accept responsibility for his actions, but he continued trying to deflect saying that it's not his fault. After going back an forth, he then starts to scream at me and completely melts down. I'm using all of the will I have in my body not to smack him, because if I were him growing up I would have suffered a much worse consequence. Luckily my mother was home, she she was able to pull him away, He was probably still screaming in the room for another 5 minutes after. At this point I am in shock. Hes never lashed out on me like this before, I admit to getting angry and losing my patience. I guess I just don't understand him and why he does certain things. To me its just wrong, deplorable,******,unacceptable. I'm sure there's some reason for it. I simply just don't get it and it's frustrating. I wish I knew a way to help him, but I dont.
On a more positive note he's not all melt down's and throwing books at people. He's pretty amazing to say the least. He seems to get along with my adult friends, who are all artists, musicians, writers, and fellow weirdo's much more than his fellow peers. He says kids his age don't understand him. His communication level and understanding of life in general are much more advanced for his age. (this was something that was also brought up my his teacher and school psychologist). In a way it breaks my heart a bit that he considers the most recent guy I dated who he's become extremely close to, his best friend. Even more so that we aren't together anymore, and aren't trying to hang out as much anymore. Things aren't the same. With that I've gone through my own struggles in the past year. (which I can handle on my own, I know this is a bit much). I'm just desperate at this point to do whatever I have to give me son what he needs to be happy and non violent towards himself and others. He's currently learning how to play the drums, is getting into art and drawing, and will start spring swim team again soon. (team sports aren't for him)
My apologies if I've rambled. I guess I've gotten a lot off my chest. Any feed back or direction to certain sections of the forums is greatly appreciated. Hope everyone is having a great Friday evening/Saturday morning.
At my wits end in getting assistance from Kaiser (who at the time did not provide AST therapy, and the regional center) I took him back to the regional center because of his increased melt downs at school and behavior issues. At the regional center he was then evaluated again for Autism. His diagnosis of ADHD was confirmed, but because he was very interactive, charming, smart, and social they could not diagnose him with Autism, or aspergers because his symptoms ''weren't severe enough'' even though he still displayed an incorrect hand grasp, stutter, and letter from his teacher explaining his melt downs, triggers, and behaviors. Somehow I knew my son fell in between the gap of me being able to get him the help he needed. So I honestly just gave up in trying to find answers. I know just by being around my son for the last 11 years that he falls on the spectrum. Maybe not severely like some, but the signs and characteristics are there. And not being able to get him the help he really needs, or a real diagnosis has been frustrating. He now takes Adderall for his ADHD an anti-depressant for anxiety, and a sleeping medication.
Just like many other people that fall on the spectrum, my son is obsessed (or was obsessed) with playing video games. He started expressing very negative behaviors like hitting himself, pulling his hair, and frequently melting down while playing online mutliplayer video games. So of course, he had to have his video games regulated. I'd say in the past year, he made great progress in behavior and his academics are at an all time high. However this past week, he had a very bad day at school, where he expressed a more volatile type of behavior towards his teacher and an aide in the same day. His history with his teacher has been questionable one in my eyes. I have always felt like shes never liked him and has singled him out in a lot of altercations with other students in his special day class. I had to have a meeting called once with the Principle and superiors at school because he came home in tears because how he described it "the kids were receiving ice cream for expressing good behavior, if you got 2 or more reflections they were not included in the incentive" my son told me that his teacher pulled him to the side, sat him along a wall and told him ''you aren't getting any ice cream because you are the worst behaved student in the class".
During the meeting I stood behind my sons claims. I never seen him that upset. But the school stood behind the teacher, saying that children with disabilities often "make up stories" basically saying my son was lying. I often question if she's Autistic herself, as when she greets you she won't shake your hand, doesn't make eye contact. That's a whole other story, but knowing that people on the spectrum need lots of detailed information, I'm trying to explain what I need to to give you an idea of what I'm dealing with without writing a 10 chapter autobiography on my son.
Going back to his recent incident. WhenI got home as soon as I walked in he approached me right away and told me in pieces what had happened. He said he had "made a huge mistake, but everyone makes mistakes so lets just get over it. Wanting to find out what really happened I asked for his reflections, one being that he thought the teacher gave him extra math problems (which wasn't the case they were for a different group of students.) This caused him to aggressively get into his teachers face, scream at her and tell her "I'm not afraid of you". The second reflection was in the library. I guess another student had a book he wanted to read so he melted down over not being able to read the book he wanted and he threw another book in the library at an aide trying to get him to calm down. Thins honestly was very alarming to me. I tried explaining to him that this, under any circumstance is an unacceptable way of behaving. He tried to pass it off as him behaving badly because he forgot to take his Adderall in the morning. However there had been many other days where he either decided to skip his med , or forgot to take it and he didn't act so very badly at school. To my son, even when I just raise my voice a bit "I am yelling at him''. I simply just wanted him to accept responsibility for his actions, but he continued trying to deflect saying that it's not his fault. After going back an forth, he then starts to scream at me and completely melts down. I'm using all of the will I have in my body not to smack him, because if I were him growing up I would have suffered a much worse consequence. Luckily my mother was home, she she was able to pull him away, He was probably still screaming in the room for another 5 minutes after. At this point I am in shock. Hes never lashed out on me like this before, I admit to getting angry and losing my patience. I guess I just don't understand him and why he does certain things. To me its just wrong, deplorable,******,unacceptable. I'm sure there's some reason for it. I simply just don't get it and it's frustrating. I wish I knew a way to help him, but I dont.
On a more positive note he's not all melt down's and throwing books at people. He's pretty amazing to say the least. He seems to get along with my adult friends, who are all artists, musicians, writers, and fellow weirdo's much more than his fellow peers. He says kids his age don't understand him. His communication level and understanding of life in general are much more advanced for his age. (this was something that was also brought up my his teacher and school psychologist). In a way it breaks my heart a bit that he considers the most recent guy I dated who he's become extremely close to, his best friend. Even more so that we aren't together anymore, and aren't trying to hang out as much anymore. Things aren't the same. With that I've gone through my own struggles in the past year. (which I can handle on my own, I know this is a bit much). I'm just desperate at this point to do whatever I have to give me son what he needs to be happy and non violent towards himself and others. He's currently learning how to play the drums, is getting into art and drawing, and will start spring swim team again soon. (team sports aren't for him)
My apologies if I've rambled. I guess I've gotten a lot off my chest. Any feed back or direction to certain sections of the forums is greatly appreciated. Hope everyone is having a great Friday evening/Saturday morning.