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Hi! Not sure if I belong here?

Obi

Well-Known Member
Hello!

I have suspected that I am on the spectrum for years now. I once saw a psychiatrist and he said that my language skills were too well developed and IQ was too high, and concluded that I wasn't. However, all my own (admittedly limited) research suggests that I have Aspergers. So I've come here in the hope of gaining more insight from those who really know about it.

I identify strongly with almost all the descriptions I've read from people who have Aspergers. I've suffered extreme social anxiety my whole life and learnt all sorts of harmful ways of coping. I have also had depression for most of my life and spent seven years on meds. Have seen various therapists and counsellors and learnt more healthy ways of coping. Now I am thirty one and have achieved really a lot in the last few years when I was at rock bottom. I am just about to sit my finals for a philosophy degree which I have been doing part-time whilst working full-time for the last four years. I expected this concerted effort to build a life for myself to yield some kind of benefits, but apart from a more finely tuned philosophical logic, I feel that absolutely nothing has changed and I've learnt nothing at all about the things that still trouble me so deeply, i.e., interacting with others.

I believe that unless people are explicit about what they think, feel and want, that I not only have no way of knowing, but would be foolish to presume one way or the other. I often suspect and imagine what they really are thinking or feeling, but hardly ever find such thoughts seriously compelling enough to motivate me into action. The other thing is that I have not the faintest idea where I stand with people. I have to reassess this constantly, as if I have to solve a new puzzle after every interaction. I have some friends and acquaintances, whose relationship to me is mysterious still after several years.

I was always the weird kid. I started voluntarily speaking backwards at about the age of eight and also made up my own language. I found ways of making friends by being sort of the class clown. But I always preferred being alone in my own world. I had obsessive interests, like these bubblegum cards I collected. I used to spend hours just looking at them and shuffling them. I remember waking up excited and jumping out of bed to go and look at them. If I lost or tore one it could throw me into a depression that lasted a couple of days.

These days I am pretty much a recluse. Social situations are too stressful and I've spent too much time alone now. My head is full of kind of feedback - I still repeat words and sentences backwards and shuffle the letters around, or count pigeons - general stuff like that - all the time in my mind. When I have bad anxiety attacks I get a song (usually the last one I heard) playing so loud on repeat in my head and nothing I do can make it stop.

Well, I could go on describing symptoms, but I am interested to hear from anyone who might be able to offer their perspective. Do you think I have aspergers? Do you recognise typical symptoms of some other disorder, or perhaps it sounds as if I have just had depression too long?

Any help much appreciated. Thanks! :D
 
The speaking backward thing sounds like something I used to do, though with different senses. Maybe it started as a game, but I would imagine there were strings coming out the ends of my fingers, and they would get stuck to stuff and tangled up. But I couldn't stop the game. I couldn't get the strings off and I couldn't stop thinking about the things they were attached to. I'd step on "the strings" to try to snap them off my fingers but they wouldn't go away. I spent hours and days with this frustration. I think it was worse when I was really stressed out. Does that make me an aspie too? It certainly sounds like you belong here.
 
Welcome to AC! Welcome welcome welcome. You'll find lots of people to hang out with and be supportive and informative with. Welcome!!!!:)
 
Hi guys, thanks for the welcome and support. This seems like a good place.

The speaking backward thing sounds like something I used to do, though with different senses. Maybe it started as a game, but I would imagine there were strings coming out the ends of my fingers, and they would get stuck to stuff and tangled up. But I couldn't stop the game. I couldn't get the strings off and I couldn't stop thinking about the things they were attached to. I'd step on "the strings" to try to snap them off my fingers but they wouldn't go away. I spent hours and days with this frustration. I think it was worse when I was really stressed out. Does that make me an aspie too? It certainly sounds like you belong here.

Hi Holly, I can relate to your experiences somewhat (though I haven't had exactly similar ones). I have a thing where I don't like feeling air under my fingernails. If the skin gets pulled too far back I have to keep pressing my fingertips against a wall or a table for a while afterwards. I used to be unable to stop, but it's not so bad anymore.

I'm going to try and get a consultation with a specialist. My experiences with psychiatrists have left me with an impression that diagnoses can be vague and ill-defined. I want to be told specifically why I might have/not have some disorder based on concrete examples that indicate such-and-such as the best hypothesis. I'm sure there is something wrong with me and am determined to get the best explanation I can. I'm also open to a diagnosis of hypochondria, so long as it is clear and someone can make me see where my reasoning has gone wrong!

I would like to know: Asperger's seems to be essentially a problem about interacting with other people and relating to them, is that accurate? I'm confused, because in some ways, I am quite an astute psychologist. I often understand a lot about people's motivations, but it is all sort of theoretical understanding. It's hard to explain somehow... I thought of this metaphor:

You are a bomb disposal expert and have been called in to diffuse a bomb. It's a very complex device, but your expertise suggests to you two things:
a) Cutting the blue wire will diffuse it
b) There's no way of knowing if it's even armed
Now, if you decide to cut the blue wire and the bomb still goes off, then you know you were wrong. But if you decide to cut the blue wire and it doesn't go off, you will never have any way of knowing whether you were right or wrong (perhaps it wasn't armed in the first place).

I see myself as a bit like this in social situations sometimes. An often highly developed theory about what's going on, but no means of verifying it. If I act on some line of reasoning and get the response I would expect, I have no way of knowing whether that is due to something else to do with the other person. I can only get any sort of verification through failure, rejection, etc. When my attempt at conversation fails, it fails unambiguously. So this is where my problem lies - not so much in understanding or even empathising with - but in relating to others. This is why I think aspergers sounds like an accurate account, but I could be wrong. Would really like to know anyone else's take on what it is about social interaction, specifically that defines their disorder.
 
Hello Obi. If I belong here then you do too (do I?) Your description of yourself could be me, the only difference being that instead of speaking backwards I have tended to want to rhyme everything (and still do so in my head but keep it to myself). Everything else about you could be me. I am continually trying to figure out where I stand with people, and cannot read them unless they are giving a very overt emotion such as anger (and plenty of people get angry with me and I never understand why). I usually think I am being nice. But as usual, I digress.

Isn't it interesting that you have chosen as your field of study the examination of reality. I sometimes believe that I can spend the rest of my life trying to understand why the world works as it does but I will never have the instinctive understanding that the NT world has. I will always be an outsider looking in. That may just give you an advantage in your career, if you choose to pursue philosophy.

Anyway, it's always nice to have a philosopher around. I hope that you will feel free to bring your understanding of things to the forum.
 
Obi, I am curious why you think you might be a hypochondriac? Are you having physical symptoms? I have weird physical symptoms that doctors haven't been able to help me with, but I know it's not all in my head because of the two grand mal seizures I had in connection with being sick. They can verify those with a brain scan. But my cardiologist and neurologist had not a clue what to do with me, and it wasn't epilepsy. I gave up trying to get help years ago. I've chalked it up to adrenal exhaustion from my aspie-anxiety.
 
Welcome to AC Obi :)

For me my problems with social situations arise from thinking too much and saying the wrong thing as well as not really understanding what I should be saying or doing and it feels like such a huge effort. Or to quote the aspergirls book by Rudy Simone
Everyone else seemed to be so relaxed and to know what to say to each other, like they'd each been given a script and I was the only one who had to adlib.

So for example the last social thing I went to was the opening of a brand new shop that an aquantince owns. There were lots of people, I felt sick and was worried I'd say the wrong thing and offend someone. I was analyzing every little thing said, movements etc, so if someone looked at me I'd be thinking "why are they looking, is my hair a mess, did they just ask me something and I missed it, why did they look at me that way, do they not like me, she's not looking anymore have I come across as rude in some way? Maybe I should have smiled...but then would I look slightly deranged...".

When someone came up to me and said "hi, how are you doing?" I freaked out, I had a fresh wave of panic and had several answers whizzing around my head and rather then the socially acceptable "I'm fine and you" or something like that I said "uhm..I'm okay..kinda freaking out...". That woman then smiled at me in a funny way and walked off, so then I went over and over what I'd said what I should have said what she would now be thinking about me, would she tell the others I was a weirdo...and on and on

Or to some it up...AWKWARD, I feel awkward, I act awkward, I am awkward in social situations.
 
Hello Obi. If I belong here then you do too (do I?) Your description of yourself could be me, the only difference being that instead of speaking backwards I have tended to want to rhyme everything (and still do so in my head but keep it to myself). Everything else about you could be me. I am continually trying to figure out where I stand with people, and cannot read them unless they are giving a very overt emotion such as anger (and plenty of people get angry with me and I never understand why). I usually think I am being nice. But as usual, I digress.

Isn't it interesting that you have chosen as your field of study the examination of reality. I sometimes believe that I can spend the rest of my life trying to understand why the world works as it does but I will never have the instinctive understanding that the NT world has. I will always be an outsider looking in. That may just give you an advantage in your career, if you choose to pursue philosophy.

Anyway, it's always nice to have a philosopher around. I hope that you will feel free to bring your understanding of things to the forum.

Hi Bay, nice to meet you. I think I get what you mean about not understanding the world. I have often described myself as feeling as if I'm inside a clear perspex box so that I can see everything and communicate, but never actually make a connection with anyone. I watch others interacting and try to emulate the way they behave, but don't get the same responses. I go over and over it in my mind, wondering what I did differently and it scares me how I can never find out what the difference is. It has always been like this since my earliest memories.
So, did you also study philosophy? In a way, you could be right; being a natural outsider is an advantage to studying philosophy. I doubt I'll be pursuing the subject though.

I'm not sure how to 'multi-quote', so in response to Holly:

The reason I suspect I'm wrong and a hypochondriac is that about three different psych docs have told me there's nothing wrong with me in the past. Well, not nothing... I have been diagnosed with dysthymia, social anxiety and recently, probable OCD. My psychotherapist who I saw once a week for 18 months said there's nothing 'cognitive' wrong with me. I've not had any kinds of seizures though. What happened with yours? I used to get panic attacks all day long. Extreme feelings of terror that just came from nowhere. I also can have physiological reactions to anxiety, such as diarrhea, violent shaking, palpitations, etc. Often these reactions come from very minor incidents, such as the 'way' someone spoke to me.

Hi Az83!

Thank you for your description. I TOTALLY relate to it! It's like you're trying to keep track of everything all the time, and make sense out of it, except there is no sense to be made, right?! That's the weird thing - everyone else seems to understand how it works, but there seems to be no sense to any of it. I feel like I'm at the fair playing whak-a-rat on the high speed setting in social scenes like that. Dinner parties are my worst nightmare though. No distractions, no shared purpose except 100% socialising. I just don't have that dimension to my character it seems. I can occasionally fake it, but what's the point? For whose benefit?! Certainly can't keep it up for long. Funnily enough, as soon as I'm in a work setting or somewhere socialising isn't the priority I can often get along pretty smoothly with people. But the moment I sense that we're there just to socialise I freak out completely and have no idea what to do.

Thanks for the input everyone. I have a doc's appointment tomorrow. Is there any specific test I should ask for?
 
Hi, Obi and welcome! Without seeing a professional, it is difficult to determine whether you have Aspergers. In the DSM-V, they are replacing Aspergers with autistic spectrum disorder, so I am not sure what significance an Aspergers diagnosis is at this point. I can relate to your experience about being very high functioning in other aspects of life yet oblivious when it comes to reading people. I am not diagnosed and do not want to because I fear that it may hurt me in my career and I am fairly normal besides being a little 'weird'. Getting a diagnosis is a very personal decision and it is up to you. Regardless, if you are depressed, you should at least seek help for that.
 
Hi Obi,
Looks like we have a lot of the symptoms you describe in common. I just found this place, and in a way it is kinda reasuring to know that i'm not alone. I too am some what of a recluse, i have no friends, i suffer from great depressive episodes, feel unable to cope very well in social situations, lost my job, my house and my wife, and i have turned to alcohol as some sort of coping mechanism to take the edge off of my anxiety. I have spoken to my GP about what is going on and she said she would get me refered for a diagnosis, but that could take time. The more i think back the more i am convinced at what has really been going on.
 
Hi Steve. Thanks, I hope you managed to get somewhere with a diagnosis or that things are generally looking up. :)

I haven't logged on here in years. Just thought I'd come back and share my experience of seeking a diagnosis. A few months after starting this thread, I got an appointment to see a specialist. We had a meeting lasting probably a couple of hours and he told me "I might as well give up my job if I were to diagnose you with Aspergers"! He said it is a "behavioural disorder" and that I hadn't behaved like someone on the spectrum during our meeting.

I was disappointed, having come to believe that Aspergers was the answer I'd always been looking for, the missing piece of the puzzle, the normal in my weird... Then something strange happened. I got a long letter from him, sort of summarising everything we'd discussed and as a conclusion, he said that he couldn't tell whether I was on the spectrum or not and would like to speak with my mother for more information about development in my early years. I decided that I'd been reticent in our meeting and that if it was anecdotal evidence he wanted, I had plenty; so I started writing to him. I kept redrafting the letter but something stopped me from ever replying.

It's taken a long time to sink in but I'm starting to realise just how much I act without even being aware of it. I've spent my life studying how people function because, for as long as I can remember, I knew I was different and it terrified me. So, I studied people as if my life depended on it and probably got pretty good at behaving like them. I have pretty much all the symptoms of an Aspie and yet a specialist couldn't see this. As he said in his letter, some people can learn how to hide their traits, especially if they don't get a diagnosis early on. Why he didn't consider this in our meeting, I don't know.

So I gave up on a diagnosis. I felt that I was struggling to convince someone I didn't know, who didn't seem to know what he was doing, about something perhaps nobody really knew enough about! :)
 
I am totally convinced of where i am in this world, enough to consider going private for an official diagnosis, i think it's worth the expense to clear this up, i will keep you posted as to how things go.
 
I am totally convinced of where i am in this world, enough to consider going private for an official diagnosis, i think it's worth the expense to clear this up, i will keep you posted as to how things go.

I got mine on the NHS after seeing my GP. Had to wait quite a few months though. If you can afford it, private's probably better/quicker. I can understand the need for a diagnosis. I would still like one but my experience has caused me to lose some faith in the value of it. Would be interested to hear how you get on.
 
I got mine on the NHS after seeing my GP. Had to wait quite a few months though. If you can afford it, private's probably better/quicker. I can understand the need for a diagnosis. I would still like one but my experience has caused me to lose some faith in the value of it. Would be interested to hear how you get on.
I think it happens because we don't understand the NHS as opposed to written research, so it's an anticlimax when you are labelled and it's a label that the government wants to deny you in every way,the problem is unless you've received life long treatment by the NHS you'd have no concept of how British citizens view diagnosis or healthcare
 

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