Just a vent...seemed to fit on this thread.
The people in my small group at church know about my self-dx. There's this one guy in the group who is also one of the worship leaders for our church, and he has taken to mentoring me on guitar and worship and worship leading (all three areas are surprisingly different in their requisite skill sets). Anyway, he's been trying to encourage me through all of this stuff I'm dealing with, even though he only knows a very little bit about the different battlefronts (I haven't talked with him about the C-PTSD issues or much of the codependent family issues). I do appreciate his efforts, I really do. And I hope he continues to try to connect with me, even if it takes a while for me to figure all of this out. But he said something today that was very hurtful, even though he didn't intend it that way, and I'm just trying to process my reaction to it.
Somehow we got to talking about autism today before service, and he was saying some good things, like that a lot of the problems are caused by society's expectations rather than being inherent to AS characteristics. He said he felt like autism is more of an anxiety issue...a distraction issue...than a true disorder. I think he was getting autism and ADHD confused, so I tried to clarify that autism is more about not being able to connect...about not interacting with people the same way that most people do (among other things, of course). I told him that when I interact with people, it's like I'm talking across a football field. He said, "Well at least we're talking. Maybe it's across a football field, but there's still a conversation going on." I tried to explain the sense of isolation, of always being alone even when I'm with other people. And he said, "Well I feel connected to you...I feel like we're connecting in this conversation. So you know...." As if to say, as long as I can appear normal to other people so that they feel comfortable and connected with me, then that's all that really matters...that my experience of lifelong isolation isn't really an issue.
I know he doesn't "get it." To him, isolation is a momentary experience of saying something wrong and feeling embarrassed about it, or being shy around people until you get to know them. How can I possibly explain what it's like to have spent 41 years trying to learn the rules well enough to feel normal, and still failing miserably? ...the realization that I can never follow enough rules to feel like a real person? ...because it's not about the rules--it's about something I can't even put words to because I'm not even sure what it would look like since I've never really experienced it? ...I just know I've never really had it?
I'm trying really hard to accept his reaching out for what it was, just a friendly attempt at encouraging me to keep working at it, and keep hoping. He didn't intend to be hurtful, and everyone says stupid things out of ignorance. I'm not angry at him. I guess things like that just shine a spotlight on the inner isolation...that even when someone reaches out, and I try to be open and authentic, and still, still I'm not heard. Still I can't explain my experience well enough for someone to understand, to see what the world is like for me. People either don't hear because they think I'm exaggerating, or they just think I'm weird and move away from me.
Anyway, sorry to be so whiny. Not sure if any of this even makes any sense. I just keep trying to further reduce my expectations for connection, so maybe one day this kind of thing won't hurt so much.