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my 8year old possible aspie

I had a meeting at school one day to discuss certain things with the school councelor only to be told she thinks my daughter should be tested for developmental disorders like autism or aspergers. When it comes to my children I am a huge crier. I will cry over just about anything with them and I don't know if I went into a state of shock being told this but I didn't shed one tear. my eyes didn't even get watery.

So I did the first step and called the pediatrician and gave her what I was given from the councelor at school with her concerns and the referral wad sent out. I had been completely fine with everything, and seem to take it all into stride until recently. We got paperwork for the dates set up for assessments and I was not very happy to see the dates so far away..not till January. I wanted them done so we can be prepared for her going into third grade and how to best help her. Not the case. and its given me anxiety be?cause I am ready to be educated..take this head on and be the best Mom to an aspie kid I can be. I think she will have Aspergers..PDD. I've been doing a lot of reading. not just information and symptoms but peoples stories also and some made me think "this is my daughter". The reading doesn't seem to be helping me relieve my anxiety to want to know answers and I need to know how to cope.
 
Don't get so hung up on "the answers." She'll either benefit from what you're finding, or she won't. That won't change just because of a diagnosis. So why not just continue to learn and use what you're learning to help your child with the things she needs help with? The only thing a diagnosis really changes is legal/insurance benefits entitlement, everything else is usable and useful even without a diagnosis.
 
Its not that I think things will change for ne..i know when we get the diagnosis my daughter isn't going to change. its more about school. She had struggled towards the end of the year this year and the counselor says with tests they can know how to best help her.
 
You can still be an advocate for her and teach her how to speak up and ask when she needs help.

How was she struggling this year? Work with her to help her find the parts that were difficult for her and help find ways of teaching her those things in a way that makes sense to her.

A diagnosis alone won't provide much information on how best to help her. That information will come from her, regardless. The school may have their hands tied when it comes to providing certain things to help, but these types of things aren't like infectious diseases, where a diagnosis comes with one or two standard things that work for pretty much everyone. All forms of help are going to be highly individualized for the person, and you don't need to wait for a diagnosis to start gathering that information (as I said, a diagnosis won't change anything on that front).
 
The diagnosis will help you raise her better. I did not know about my Aspergers till I was 40 years old, but I dealt with it my whole life. Nobody caught on why I was the way I was. Had my parents known, had I known years ago, I could have learned to better cope and cope in a much healthier way than I did for those 40 years. Do not take it like your daughter is damaged. She will be the same sweet girl she is now. But going forward you will be able to anticipate trouble spots before they become a huge family issue. This will be very important as she gets into her teens and boys come into the picture. By joining our group here, you can educate yourself on what its like from her side, if she is diagnosed with AS, and how you can be the best mom you can be. You have taken the first steps and I hope it all goes well for you and your daughter. Mike
 
I'm sorry to hear about all you have had to go threw and thank you for the she supportive answer. i would never ever look at my daughter as "damaged" ever. She's my first born child and I love her to death. i have learned so much just in a little amount of time. I think you. understand qhen i say the diagnosis would help me.
 
Hello,

From the books you are reading do you get the idea sometimes that it describes your daughter very well? I understand that is great to have something set in stone and schools will only act once they have a diagnosis. But if the books you are reading describe your daughter or certain issues she may have or be facing then it would definitely be worth trying the solutions they propose and applying what you learn. It may help her anyways if she shows the symptoms to try some solutions for them. Even then there is rarely a clear cut path to follow to ameliorate the issues she is dealing with, it often is taking a bit of this and that. ASD in itself is a very complex and vast disorder, in that there are many variances in terms of severity and the kinds of problems that someone with an ASD has or could work on. There is often overlap with other disorders (or sometimes behaviours that can lead to a disorder). So if there is something that describes her well then it is worth trying the solution. Have you read All cats have aspergers All Cats Have Asperger Syndrome | AspiesCentral.com or Aspergirls Aspergirls: Empowering Females With Asperger Syndrome | AspiesCentral.com I have not read the former but found the later to be quite useful and accurate having general recommendations for the person with AS as well as the parent. Rudy Simone has written many great books about aspergers, but they are more tailored towards young and mature adults.

Feel free to share some of the issues you are facing with us or read the forums a number of us have children with AS and can relate some information. Personally my son has AS and ADHD and my ex and I have had to find out how to help him best as we went along. I likely have AS and a couple other members of my family have it. We can also relate some behaviours or issues that closely resemble our experience with AS and what could be something else as well as solutions.

For now that is the best you can do. I know it does take a while to get testing and a proper diagnosis. It is unfortunate that the school will not do anything differently until they have the formal diagnosis and a piece of paper but you can always approach your daughter's teacher and try to work with her over whatever issues she may have. It all depends what kind of teacher she has too, some are very compassionate, understanding and love their job and the kids, others could not care less. You have to be able to determine which kind her teacher is first and maybe switch her. Perhaps try to meet with all the potential teachers she could have and push the school to put her in the class of the one that you have the best rapport with. Even without a formal piece of paper some teachers will be very helpful. Others though will do more harm then good, so watch out for those for your daughter's sake. My mother would sometimes try to get help from the teachers since I had "problems" when I was young, but it backfired with a couple and went well with others, so be careful along that front.
 
Hello Special Mom,
It is insulting that it should take that long to identify your daughters personality characteristics, but know this. There is nothing "Wrong" with your daughter, only different. No matter what she has, it changes nothing. She is still the same beautiful person that you made, and a diagnosis will not change how anything is, just how you react to it.
I (as well as many others) consider having Aspergers a gift. We have so much to offer, and in a way that most others could never understand, that we often are in overdrive, even if we seem quiet.
Finding out early is important, and you are very fortunate that you are involved and know when she is so young. Channeling her energy in a positive direction will make all the difference for her, and most importantly for your daughter, is having someone who accepts and believes in her. She is a very lucky girl.
You Go Mom!
 
I agree. I didn't learn about my AS until I was in my 50's. I lived half a century (dang, that seems old) trying to cope, adapt, and simply survive. Living in a frighteningly dysfunctional home didn't help any. As you said, " . . . anticipate trouble spots . . ." That is key. The information available now and strategies on how to live will make living much easier. More so than it was fifty years ago.
My daughters main trouble spot is her attwntion span..and listening skills. When she is focused on something that has caught her attwntion (mainly drawing..she loves to draw and even had her first grade teacher saw she has never had anyone be so detailed in her drawings when doing journals)..its a struggle to get her to listen when qe are trying to talk with her..ask her a question. We literally have to take what she is doing away to get her to listen to us...and 80 percent of the time we qould get tantrums. and she's not the throq herself on the floor and scream type of girl. but she does this whining. and I've been trying to work with her on it but at times when i see progress sometimes i feel like i can't get threw to her at all. Thise are the main two...she also has a priblem sitting still but I'm used to it. dealing with it in the store while ahopping can get frustrating but I've learned to be patient with her. I struggle sometimes on when I need to be down right strict with her and when i need to back off. That's a big struggle for me. Knowing how to disipline and when I should. I always try and talk firat. Tell her..but knowing qhen I have given. her enough cues and her not following threw..that is MY biggest hurdle
 
If she loves to draw, let her :) What could a state education system give her that's better than her abilities in that department? None :)

Don't let them beat her down into conforming when she has talent. Of course, I might be slightly biased having gone through "education" through to postgraduate level and gaining nothing worthwhile from it whatsoever. However, my "special interests" have made me more money than the "qualifications" ever did.

School is just a crèche for learning to socialise and "know your place". It doesn't work for aspies. Too many barriers and knock downs to stop true development. Ok, learning to read, write and count is important. For everything else, there is google! :D

(Edit:- ok, here's how I see it. Your daughter loves drawing. She is just about to go to school where she will be told what to do and think for the next 8 years, in order to pass exams (which test basically whether you can answer what you are asked in a way which pleases the examiner). If she is then "qualified" she could then go to art school, where they will then spend years telling her how to draw and what to think. If she passed their exams (usual criteria) she may then have a "qualification" of art. She then will have to go out into the world and survive. If she wanted to be a professional artist, how much of any of the last twelve or so years will be any use whatsoever? She will then have to learn how to survive.

I think what I'm saying is that aspies with talent exist outside mainstream. Nurture and protect her individuality and don't let it be destroyed by the system of "education" which is anything but.)
 
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My daughters main trouble spot is her attwntion span..and listening skills. When she is focused on something that has caught her attwntion (mainly drawing..she loves to draw and even had her first grade teacher saw she has never had anyone be so detailed in her drawings when doing journals)..its a struggle to get her to listen when qe are trying to talk with her..ask her a question. We literally have to take what she is doing away to get her to listen to us...and 80 percent of the time we qould get tantrums. and she's not the throq herself on the floor and scream type of girl. but she does this whining. and I've been trying to work with her on it but at times when i see progress sometimes i feel like i can't get threw to her at all. Thise are the main two...she also has a priblem sitting still but I'm used to it. dealing with it in the store while ahopping can get frustrating but I've learned to be patient with her. I struggle sometimes on when I need to be down right strict with her and when i need to back off. That's a big struggle for me. Knowing how to disipline and when I should. I always try and talk firat. Tell her..but knowing qhen I have given. her enough cues and her not following threw..that is MY biggest hurdle

Something I noticed with my son is that he does listen a lot of the time when he does not seem to be paying attention. He appears a bit distracted in class but still gets good grades and assimilates the information. Although it sounds odd someone else I knew that may have aspergers would draw and occasionally take notes on the margin of the drawing in lectures (at the university level) and he found that this actually helped him concentrate and assimilate all of the information better. He had very good grades, so something was working. The school sometimes needs to accept that not everyone learns by the conventional fashions and you can help them accept that and help your daughter at the same time. There are many different ways to learn something (drawing, making a story, hearing it, repeating it, teaching it, writing it, organizing it) and many different kinds of learners. Some just take it to one extreme or another.

Although I also find it annoying when my son is too focused on what he is doing and does not answer a direct question. With him I just wait and ask when he is done, no point in upsetting him or getting frustrated that he is not listening, unless of course it is something very important. Sometimes it helps to let him know something ahead of time or give him time to think about and answer the question. Aspies can take a while before they make up their minds about something (like what they want to eat for supper). Or I let him know that I will be interrupting his activity 5 minutes ahead of time (such as when it is time to go and do something else). I imagine most children in general do not like being interrupted from what they are doing. Someone wrote a book using a method where you would interupt whatever they are doing as a way to discipline them. I guess with AS it might be worse since we are often very focused in our own little world.

It takes at least two months for a behavioural change to take effect and become more permanant depending on the person. So do not give up if you do see some progress with what you are doing, it just takes a while to become a permanent thing. It will also happen that she will regress so it seems. Stress can make people regress in terms of recently learned behaviours. In general children are very adaptable so they will try several things to see what works. At times it appears that they regressed significantly but they are just trying out something else, if that does not work then they will go back to what they know. So it helps to be consistent.

My son also has issues sitting still, but I think that is mainly because of his ADHD. Oddly he gets headaches in car and I think it is because in a conventional car he has to sit still. He does not get headaches on a bus, but buses have no seatbelts. I was quite the opposite of that when I was young, I could sit still for very long but still found odd positions to sit in.

Yes I know there is a fine line between being too strict and not strict enough. I sometimes feel I am not strict enough with my son but my brother and his wife seem very strict with their kids. According to experts sometimes we try talking to children too much and they do not fully understand what we mean so they say we should just discipline them "my way or the highway". But as an aspie that quite likes their independence I absolutely hated that (and much worse) as a child. I would much prefer it if someone explained the reasons to me in a way that I could understand, but that takes a lot of patients that most people (especially my parents) did not have. Being somewhat independent and doing our own thing might be an aspie thing, which can be frustrating for a parent. But in my opinion it might be best to at least attempt to explain and if that does not work some parents try to give their kids "choices". Choices are really two things the parent agrees with but gives an independent striving child the idea that they have control over their lives. As a really bannal example: "Do you want to wear your fairy shoes or your princess shoes?" In that way they still wear shoes but they get to choose :). With older children a compromise works well too.
 
Tying the shoes! yes..thank u! my daughter can tie shoes..it did take her forever to learn.but she does it her own way. They usually won't stay tied for very long but hey..its a working progress. i don't like to hit. i won't lie i spank occassionally but its not very often. and the more i learn about AS the more i realize and the more patient i seem to become.
when i need her to listen...like at a store when she's doing her hop..skip dance thing and bumping into people. after many times of asking her to try and stop..or even just.be careful i will stop..make her look me in the eye which is difficult for her i know. but this is how i do it so she knows that i mean buisness. i tell her. "I know its difficult but you need to listen to me. and pay attention." It usually works for a little while but then she's back at it again. and i will judt remind her how she told me she would be good. her doctor thinks she may also have ADHD which I'm sure is a part of it. The drawing while listening in class is a great idea. I will have to experiment at home and see how that works...and if so i can bring it to the teacher. and as for teachers..its a fifty fifty flip becaure there are only two teachers per grade and i think she got the better one for this year because of "talk" from other parents about how the other teacher is she could have got. so I'm hoping that I will not have problems and she will be willing to work with Emily (and me). Thank you all for your support..I'm starting to feel like i have a handle on things and I'm starting to learn how my daughter feels and what is going on in her mind. I'm very thankful for joining this group :)
 
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I see, I am not too sure what could be done about her hop skip dance thing. It may just be her odd way of walking :), some of us have odd ways of walking but it does not usually involve something that elaborate. The odd walks are often hard to curtail and parents that have tried failed. However, she should try to be more careful not to bump into others. Reminders work, but perhaps trying to work with her to incorporate looking into her hop skip dance thing would work. If she remembers to look every time and it becomes a part of her routine than there would be less accidental bumping in others. That or maybe she is bored at the store but I understand that you cannot always leave her at home to go shopping.
ADHD is co-morbidity for aspergers and can be treated by medications. I am not endorsing it, but sometimes it is useful and better. My son has sleeping and mood issues (not diagnosed) and is taking a medication for ADHD which helps a bit with the other things too.
I am glad that your daughter and you got a good teacher this year. Hopefully she gets a good one next year too, sometimes those can be quite hard to come by.
 
I'm sorry you have had such hard childhood growing up. Mine wasn't the best either. it didn't involve hitting but other things that will always effect me and memories growing up. Thank you for sharing your experience with me :)
 
I appreciate your kind comment, thank you. Frankly, I would imagine that a great number of us have had a difficult childhood, which exacerbated our respective disorders and vice versa.

Good point. When I used to chalk up being an introvert, I always associated it with being in a military family and having to move around all the time. Some kids handle it very well, and others don't. My brother mentioned to me not long ago that by the time he became a teenager he didn't put much effort into making new friendships, because he knew they only lasted one to two years.

Yeah, it didn't drive who and what I am, but to use your words it definitely exacerbated being on the spectrum.
 
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I had a meeting at school one day to discuss certain things with the school councelor only to be told she thinks my daughter should be tested for developmental disorders like autism or aspergers. When it comes to my children I am a huge crier. I will cry over just about anything with them and I don't know if I went into a state of shock being told this but I didn't shed one tear. my eyes didn't even get watery.

So I did the first step and called the pediatrician and gave her what I was given from the councelor at school with her concerns and the referral wad sent out. I had been completely fine with everything, and seem to take it all into stride until recently. We got paperwork for the dates set up for assessments and I was not very happy to see the dates so far away..not till January. I wanted them done so we can be prepared for her going into third grade and how to best help her. Not the case. and its given me anxiety be?cause I am ready to be educated..take this head on and be the best Mom to an aspie kid I can be. I think she will have Aspergers..PDD. I've been doing a lot of reading. not just information and symptoms but peoples stories also and some made me think "this is my daughter". The reading doesn't seem to be helping me relieve my anxiety to want to know answers and I need to know how to cope.
I just wrote a note to your post about what the aspie view of parents is. I answered it more with a general view of the aspie child state of mind. But I will just add, having seen this post too now:

If anything you read seems too negative, follow your instincts and turn away from it. I think the literature on autism needs more input from many of us who have it, in my opinion. A lot of the "horror" of autism that is stirred up from some sources seems to be heavily rooted in neurotypical people having a strong personal reaction to not getting something they think should be transpiring in their interactions with autistic/aspie people. But that is in part simply due to their own needs. They can get those needs met from other NTs in their life. They can have very good, rich connections with the autistics if they learn how to connect and if the autistics learn about the NTs. I cannot expect a blind person to tell me how good I look today. Maybe one of my seeing friends might tell me. That is a blunt example, but you get the point. From an autistic perspective, I sort of think a lot of people just need to learn about other types of people - and that many NTs might find it freeing to hang out with aspies with whom they can really talk about anything, not worry about hidden agendas and social ranking, not offend easily and "just be." We are often very loyal and practical types too. Your daughter may enjoy learning about being an aspie and then learn more about neurotypicals. Both have strengths. Together we have moved civilization along to its modern state! We need both types.
 

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