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New to this community and desperately looking for help understanding my son and how to help him .

John Quinn

New Member
Hi All
I'm new to this so forgive me if this is the wrong place to try and find answers .

I've got a 16 yr old son ( Andre )who as a child was diagnosed with autism.
He functions fantastically good every day chores like having a shower, brushing his teeth and getting dressed, keeping his room clean, going to school, doing homework etc. however lately he has become very aggressive with frequent outbursts and I'm struggling to understand why. He gets quite fixated at times on things that I would consider very trivial and I'm trying to find a way of understanding what is actually going on with him when he heads into one of these meltdowns. He bites himself very aggressively lately. Was also hitting his head off of any hard object he can find he blinks and flutters his eyes quite a lot and speaks some kind of a mumbled language that I just cannot understand.

I am desperate to help him but I just do not know where to start.

Up to a year ago he was the happiest kid on this planet but now it seems his days are full of frustration and anger.he is for the best part nonverbal so it is very hard to have a conversation with him and I can't get him seem to want to explain to me what is going on with. His communication skills are pretty poor and while he has therapy ---quite frequently I can't seem to unlock the reason for all his frustration and anger .

If anybody could share some insight or ideas with regard to where I might start to what I may do I would really really really appreciate it and God bless you all.
 
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Hi John Quinn -
There may be something specifically traumatizing that happened and set him off. He may or may not actually know what is affecting him. More likely, he doesn't exactly know what it is...even if he could tell you. I have an autistic husband, and my young daughter is on the spectrum too...I'm what they call a "Neurotypical" like you.

Whether or not there was a traumatic event, I feel positive that his behavior is also the result of something that has built up overtime. It is VERY hard to maintain a good track record with school and home life, when you really aren't built for the world in which we live. My only advice would be to take a few days alone with him, out of structures like school and the rest of the family. Don't expect a great wrap-up conversation or even answers. Just offer your presence as a father, and observe what your instincts tell you are his greatest pressures. You could even write them down and post them here for feedback.

Also, if he is on any medication, those can greatly affect people on the spectrum. So it'd be easier to read him if he weren't. I've been there, considering one of my husbands reactions trivial, even in a friendly way. Wishing he could just "relax" and regroup. But I assure you it's not trivial.
 
Hi John Quinn -
There may be something specifically traumatizing that happened and set him off. He may or may not actually know what is affecting him. More likely, he doesn't exactly know what it is...even if he could tell you. I have an autistic husband, and my young daughter is on the spectrum too...I'm what they call a "Neurotypical" like you.

Whether or not there was a traumatic event, I feel positive that his behavior is also the result of something that has built up overtime. It is VERY hard to maintain a good track record with school and home life, when you really aren't built for the world in which we live. My only advice would be to take a few days alone with him, out of structures like school and the rest of the family. Don't expect a great wrap-up conversation or even answers. Just offer your presence as a father, and observe what your instincts tell you are his greatest pressures. You could even write them down and post them here for feedback.

Also, if he is on any medication, those can greatly affect people on the spectrum. So it'd be easier to read him if he weren't. I've been there, considering one of my husbands reactions trivial, even in a friendly way. Wishing he could just "relax" and regroup. But I assure you it's not trivial.
 
Thank you for the response . It's killing me to see him like this . He used to be so happy in himself , so outgoing and always wanting to be messing around laughing and joking , now it's like I have lost him .
 
Welcome, John Quinn! I'm glad you've joined us here. :)

Thoughts for Andre:
I started arm biting and head-hitting during my teen years, and again during menopause. Hormones makes stuff hurt! Regular teens can play a sport, go off on their own with pals, deliver a diatribe all about how nobody can possibly understand how they feel. I couldn't do any of those things, plus... hormones just tip the autistic apple cart into the meltdown zone!

What helps me when aggression and self-injurious fits get frequent is OT in a sensory room, or having a sensory diet, meaning a regular program of physical a tovities suited to my autism's needs Can you seek out an OT with experience with sensory integration and access to a sensory room? Once she does a sensory profile on Andre, she will know which types of sensory input his brain craves.

Another idea is to see a f you can get Andre time with an SLP who has access to an AAC specialist. When I can not speak, I use a tablet to communicate. I learned to speak with my tablet at restaurants, post office, bank, and grocery store.
This might give Andre freedom to communicate. The app I use is called Talk Tablet.

I am hoping good things for you and Andre.
 
Welcome John, thank you for caring, so many parents make zero effort to understand their autistic children but you're a good father. It's fine to ask for help here, nobody's going to bite your head off like they will pretty much everywhere else on the internet, but future inquiries you might want to post in "General Autism Discussion"; you'll get increased exposure, more than you'll get in the Intro section.

I have no way of knowing how much you already know, so if you'll forgive me I'm just going to spill everything I have to say on the subject:

In terms of Andre's recent aggression, from what you describe my theory is that it's a convergence of three factors.

1) The Hormonal Aspect: Males reaching sexual maturity get huge boosts of testosterone, which we all know heightens aggressive behavior. Most teens just turn into "little alphas" but I'd wager that, combined with the other two aspects, increased hormone levels are the fuel behind the aggression while #2 and #3 provide reasons why. Side note: does he have acne on his chest? That's probably the best way to tell yay or nay on high testosterone without a laboratory test, which you may also consider. Also worth noting is that the hormonal aspect of puberty tends to hit like a ton of bricks rather than gradually - some sooner, some later. That's the best explanation I can think for the rapid change in behavior between 15 and 16, a short time indeed.

2) The Genetic Aspect: Many people with autism have low levels of activity in the MAO-A enzyme, aka The Warrior Gene. This can result in unexplained aggressive behavior or violence disproportionate to the situation. This article, "About The Warrior Gene (MAOA) And What To Do If You Have It - Selfhacked" explains the links between weak MAO-A activity and aggressive behavior, the most interesting of which is: "the perfect violence soup is low MAO-A, social isolation, high testosterone"; incidentally all three convergent factors I'm mentioning. Also, if he has at least a moderate tremor, that can indicate high serotonin levels which can be a telltale for low MAO-A activity.

3) The Social Frustration Aspect: I can almost guarantee that Andre wants to talk to other people, but one thing or another is preventing him from being able, which I can say is very frustrating; I was selectively mute from ages 12-19. I vividly remember people speaking to me, and I wanted so incredibly bad to say something, but I just couldn't make the words come out of my mouth. Usually I'd panic and bolt, but if I felt that wasn't an option I would get really frustrated and sometimes have a meltdown.

As for the self-injurious behavior, I may speak from experience that biting is a much more effective way to release the overwhelming tension than any other form of self-mutilation. That's probably why he's doing it. Ditto with the head banging; I'm willing to bet he's probably rocking back and forth many of the times when he head bangs?

Something that's very telling to me is that you don't say he's violent towards others, just angry with frustrations and outbursts. This tells me he may be having the teen version of a meltdown like you say, which looks different than it does in children; usually by that point people with autism have learned to keep at least some measure of control during a meltdown, but with the agitating factors mentioned above may be more aggressive and focused in nature. Especially the case with the high testosterone, I've abused testosterone before and it just kind of puts you in this red haze of rage at all times.

WELL THEN, that's a whole lot of "what and why", but as GI Joe says, knowing is half the battle - only half the battle. Maybe I can offer some advice on how to help.

1) Hormonal Aspect: usually screwing with testosterone/estrogen is a really bad idea. There are supplements that will lower testosterone, but don't bother; hormone altering drugs are effective in the short term, but the body will upregulate or downregulate natural testosterone production, so after a couple weeks you might as well be swallowing Sweettarts because you'll be right back at square one.

What I would do about this is to talk to his doctor and ask for a test for testosterone levels. Usually a doctor won't disrupt the natural processes of puberty, but it's possible his testosterone levels are problematically high. See if they are and go from there.

2) Genetic Aspect: This is the hard one. From the medicinal standpoint, there are two things that must be done in sequence: First, serotonin levels need to be decreased. Arguably, a gluten-free diet can at least do part of the job. I'm not sure, but an MAOI antidepressant that acts on the MAO-A enzyme would probably be the most effective medication, and the only one I can think of. Unfortunately, most doctors only prescribe MAOIs as a last resort only for severe depression. A tiny percentage of people experience life-threatening side effects with MAOIs, so doctor's don't want to take the risk being held liable for that and only prescribe the 100% safe meds that don't really work.

The reason serotonin levels must be lowered is because serotonin inhibits the development of oxytocin nerves, which are "needed for language development, bonding with others, and social skills, language development". Do what you can to lower serotonin and hopefully more oxytocin nerves will develop. I say hopefully because not much can help increase oxytocin levels; Buspirone (Buspar), an easy-to-obtain anti-anxiety medication might do it. Otherwise, all I can think of is substituted oxytocin, aka opiates, but that's really playing with fire. It may also be worth noting that oxytocin is found in the thyroid, which is underactive in many with ASD. I'm not sure exactly how much, but if Andre is one of us with low thyroid activity treating it may contribute. Testing thyroid levels is a simple blood test, and fixing it is 6 drops of nascent iodine daily with Selenium for safety.

3) Social Frustration Aspect: There are a few things you could try. For the non-verbal part of it, try this: catch him when he's calm, and just have a one-sided conversation with him. Make sure to be calm and keep undue pressure off him to respond. If you hit a point where it would be natural to pause for a response, count two seconds in your head and then continue. Don't ask too many questions. The point of all this is to give him opportunities to speak, but only if he wants to, without feeling that he has to even though he cannot; the point further being to keep him from getting so frustrated it triggers a meltdown. Don't tell him what you're doing or he might just wait you out. He may not speak much or at all, but the words are in his head; I doubt he just thinks in wordless impulses like an animal. He'll talk eventually.

As for the self-injury, there's no way to get him to stop, unless you take extreme measures, the choice to do so is his (note: disinfect the crap out of the bites if they break the skin, a human bite is one of the most toxic bites in nature). I would bet he only self-harms when he's upset, so the only way is to stop the meltdowns and subsequent self-injury is by addressing the three aspects I outlined.

Finally, I have to address a concern I have. With everything you described, I'd say Andre is at a high risk of being put on antipsychotics. If it hasn't happened already, someone's going to try to talk you into it. 8 years of feverish research and personal experience tells me that this class of drugs is completely useless except as a chemical restraint, and that's all they're used for. Being too sedated to lift your head is not "behavior well-managed with medication".

I just say because I feel passionately against the rampant use of antipsychotics to induce compliance by destroying a person. I used to work with medical records of developmentally disabled children in a large inpatient psych facility. I had to read the whole file for each kid, and I was especially interested in the autistic kids. With them, it was so common to find an incident report describing a meltdown as a "tantrum", where the staff did everything they could to make the situation worse, and as a result recommended an increase to the haloperidol that literally every single kid in that place was on. It broke my heart, seeing the name and face of every kid and knowing they were all kept chemically restrained for the convenience of staff. I'm made to understand that this is the general unwritten policy for most psych hospitals, and that needs to change.

Well, that's what I have. Feel free to contact me if you need anything.
 
Thank you for the response . It's killing me to see him like this . He used to be so happy in himself , so outgoing and always wanting to be messing around laughing and joking , now it's like I have lost him .

I am sorry. My little girl is particularly joyful for someone on the spectrum as well. I'd be devastated if that changed. I imagine Andre has been more joyful because he has caring parents. Some of the other stuff going on in his environment has likely become overwhelming enough to overshadow his enjoying your love.

Another autistic person, like Warmheart would know more about his physical/mental discomfort. When my husband feels threatened or backed into a corner by something from his environment, it can easily exacerbate physical issues. And though he still loves me and our kids very much, he cannot reassure us of it when overloaded.

My husband suggesting asking if there has anything that has changed at his school or a new person or persons that he's not used to spending time around your home?
 
Welcome, John Quinn! I'm glad you've joined us here. :)

Thoughts for Andre:
I started arm biting and head-hitting during my teen years, and again during menopause. Hormones makes stuff hurt! Regular teens can play a sport, go off on their own with pals, deliver a diatribe all about how nobody can possibly understand how they feel. I couldn't do any of those things, plus... hormones just tip the autistic apple cart into the meltdown zone!

What helps me when aggression and self-injurious fits get frequent is OT in a sensory room, or having a sensory diet, meaning a regular program of physical a tovities suited to my autism's needs Can you seek out an OT with experience with sensory integration and access to a sensory room? Once she does a sensory profile on Andre, she will know which types of sensory input his brain craves.

Another idea is to see a f you can get Andre time with an SLP who has access to an AAC specialist. When I can not speak, I use a tablet to communicate. I learned to speak with my tablet at restaurants, post office, bank, and grocery store.
This might give Andre freedom to communicate. The app I use is called Talk Tablet.

I am hoping good things for you and Andre.
 
Thank you all for the responses . Everything and anything helps . If I can understand what he's going through I can be better prepared to help or prevent his anxiety . Hearing personal situations and hearing how people overcome the issues associated is a big help as Andre is so non communicate it's hard to figure out what he's going through or how to help .
His therapy is slowly helping I think but I'm desperate to understand him and his feelings more and as soon as I can .
Again thank you all and please keep the responses coming .
I know who my prayers go out to tonight
God bless
John
 
I am sorry. My little girl is particularly joyful for someone on the spectrum as well. I'd be devastated if that changed. I imagine Andre has been more joyful because he has caring parents. Some of the other stuff going on in his environment has likely become overwhelming enough to overshadow his enjoying your love.

Another autistic person, like Warmheart would know more about his physical/mental discomfort. When my husband feels threatened or backed into a corner by something from his environment, it can easily exacerbate physical issues. And though he still loves me and our kids very much, he cannot reassure us of it when overloaded.

My husband suggesting asking if there has anything that has changed at his school or a new person or persons that he's not used to spending time around your home?
Thank you . I'll discuss all that with my wife . God bless
Welcome John, thank you for caring, so many parents make zero effort to understand their autistic children but you're a good father. It's fine to ask for help here, nobody's going to bite your head off like they will pretty much everywhere else on the internet, but future inquiries you might want to post in "General Autism Discussion"; you'll get increased exposure, more than you'll get in the Intro section.

I have no way of knowing how much you already know, so if you'll forgive me I'm just going to spill everything I have to say on the subject:

In terms of Andre's recent aggression, from what you describe my theory is that it's a convergence of three factors.

1) The Hormonal Aspect: Males reaching sexual maturity get huge boosts of testosterone, which we all know heightens aggressive behavior. Most teens just turn into "little alphas" but I'd wager that, combined with the other two aspects, increased hormone levels are the fuel behind the aggression while #2 and #3 provide reasons why. Side note: does he have acne on his chest? That's probably the best way to tell yay or nay on high testosterone without a laboratory test, which you may also consider. Also worth noting is that the hormonal aspect of puberty tends to hit like a ton of bricks rather than gradually - some sooner, some later. That's the best explanation I can think for the rapid change in behavior between 15 and 16, a short time indeed.

2) The Genetic Aspect: Many people with autism have low levels of activity in the MAO-A enzyme, aka The Warrior Gene. This can result in unexplained aggressive behavior or violence disproportionate to the situation. This article, "About The Warrior Gene (MAOA) And What To Do If You Have It - Selfhacked" explains the links between weak MAO-A activity and aggressive behavior, the most interesting of which is: "the perfect violence soup is low MAO-A, social isolation, high testosterone"; incidentally all three convergent factors I'm mentioning. Also, if he has at least a moderate tremor, that can indicate high serotonin levels which can be a telltale for low MAO-A activity.

3) The Social Frustration Aspect: I can almost guarantee that Andre wants to talk to other people, but one thing or another is preventing him from being able, which I can say is very frustrating; I was selectively mute from ages 12-19. I vividly remember people speaking to me, and I wanted so incredibly bad to say something, but I just couldn't make the words come out of my mouth. Usually I'd panic and bolt, but if I felt that wasn't an option I would get really frustrated and sometimes have a meltdown.

As for the self-injurious behavior, I may speak from experience that biting is a much more effective way to release the overwhelming tension than any other form of self-mutilation. That's probably why he's doing it. Ditto with the head banging; I'm willing to bet he's probably rocking back and forth many of the times when he head bangs?

Something that's very telling to me is that you don't say he's violent towards others, just angry with frustrations and outbursts. This tells me he may be having the teen version of a meltdown like you say, which looks different than it does in children; usually by that point people with autism have learned to keep at least some measure of control during a meltdown, but with the agitating factors mentioned above may be more aggressive and focused in nature. Especially the case with the high testosterone, I've abused testosterone before and it just kind of puts you in this red haze of rage at all times.

WELL THEN, that's a whole lot of "what and why", but as GI Joe says, knowing is half the battle - only half the battle. Maybe I can offer some advice on how to help.

1) Hormonal Aspect: usually screwing with testosterone/estrogen is a really bad idea. There are supplements that will lower testosterone, but don't bother; hormone altering drugs are effective in the short term, but the body will upregulate or downregulate natural testosterone production, so after a couple weeks you might as well be swallowing Sweettarts because you'll be right back at square one.

What I would do about this is to talk to his doctor and ask for a test for testosterone levels. Usually a doctor won't disrupt the natural processes of puberty, but it's possible his testosterone levels are problematically high. See if they are and go from there.

2) Genetic Aspect: This is the hard one. From the medicinal standpoint, there are two things that must be done in sequence: First, serotonin levels need to be decreased. Arguably, a gluten-free diet can at least do part of the job. I'm not sure, but an MAOI antidepressant that acts on the MAO-A enzyme would probably be the most effective medication, and the only one I can think of. Unfortunately, most doctors only prescribe MAOIs as a last resort only for severe depression. A tiny percentage of people experience life-threatening side effects with MAOIs, so doctor's don't want to take the risk being held liable for that and only prescribe the 100% safe meds that don't really work.

The reason serotonin levels must be lowered is because serotonin inhibits the development of oxytocin nerves, which are "needed for language development, bonding with others, and social skills, language development". Do what you can to lower serotonin and hopefully more oxytocin nerves will develop. I say hopefully because not much can help increase oxytocin levels; Buspirone (Buspar), an easy-to-obtain anti-anxiety medication might do it. Otherwise, all I can think of is substituted oxytocin, aka opiates, but that's really playing with fire. It may also be worth noting that oxytocin is found in the thyroid, which is underactive in many with ASD. I'm not sure exactly how much, but if Andre is one of us with low thyroid activity treating it may contribute. Testing thyroid levels is a simple blood test, and fixing it is 6 drops of nascent iodine daily with Selenium for safety.

3) Social Frustration Aspect: There are a few things you could try. For the non-verbal part of it, try this: catch him when he's calm, and just have a one-sided conversation with him. Make sure to be calm and keep undue pressure off him to respond. If you hit a point where it would be natural to pause for a response, count two seconds in your head and then continue. Don't ask too many questions. The point of all this is to give him opportunities to speak, but only if he wants to, without feeling that he has to even though he cannot; the point further being to keep him from getting so frustrated it triggers a meltdown. Don't tell him what you're doing or he might just wait you out. He may not speak much or at all, but the words are in his head; I doubt he just thinks in wordless impulses like an animal. He'll talk eventually.

As for the self-injury, there's no way to get him to stop, unless you take extreme measures, the choice to do so is his (note: disinfect the crap out of the bites if they break the skin, a human bite is one of the most toxic bites in nature). I would bet he only self-harms when he's upset, so the only way is to stop the meltdowns and subsequent self-injury is by addressing the three aspects I outlined.

Finally, I have to address a concern I have. With everything you described, I'd say Andre is at a high risk of being put on antipsychotics. If it hasn't happened already, someone's going to try to talk you into it. 8 years of feverish research and personal experience tells me that this class of drugs is completely useless except as a chemical restraint, and that's all they're used for. Being too sedated to lift your head is not "behavior well-managed with medication".

I just say because I feel passionately against the rampant use of antipsychotics to induce compliance by destroying a person. I used to work with medical records of developmentally disabled children in a large inpatient psych facility. I had to read the whole file for each kid, and I was especially interested in the autistic kids. With them, it was so common to find an incident report describing a meltdown as a "tantrum", where the staff did everything they could to make the situation worse, and as a result recommended an increase to the haloperidol that literally every single kid in that place was on. It broke my heart, seeing the name and face of every kid and knowing they were all kept chemically restrained for the convenience of staff. I'm made to understand that this is the general unwritten policy for most psych hospitals, and that needs to change.

Well, that's what I have. Feel free to contact me if you need anything.
 
I'm good Danny
I saw that attack on the news and I'm horrified. It's a cruel world at times .
Yes its a terrible thing mate, it wont be the last unfortunately. ... Bad enough having to go out for most of us on here. Let alone going out and never coming back.... Really puts me off going to crowded places... Glad ya ok bruvver....!
 

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