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Fiiiiiiiiiinally Diagnosed As Having Aspergers (ASD)

Hopeless_Aspie_Guy

Well-Known Member
So yer basically I had a long 5 hour session today at the mental health unit in my local hospital (an appointment 3 years in the making since my initial referral from the councillor at my request) accompanied by my mum.

The lady we saw was very nice and it was basically a series of questions and discussions based around the qualifying criteria to establish if I had autism spectrum disorder (aspergers is no longer being used as a diagnosis) from which she was taking notes. After just half of the session was over she was satisfied that I could be diagnosed as having ASD (which was a relief to my unshakable belief that I did) but the questions and discussions continued after the lunch break to help build up a portfolio for my personal condition.
The kind of questions I was asked was largely based around my life from birth to present day. In the UK you're requested to bring a close family member with you whose known you since birth (so I brought my mum along) to make answering some of the questions about your young childhood easier. An example of some of the questions varies from things like my understanding of fascial expressions, to scenario based questions to questions about me as a baby and infant. I was also allowed to add additional info to help.

For the end of the session I had my mum wait outside and out of earshot so that I could also reveal to the lady my other problem (namely this hypersexual parasite ruining me). I had to be very careful that 'it' did not get to speak through me and say anything inappropriate (which it didn't, even though I had to revel some very personal sexual things to help get my point across) and she was satisfied that though worse than anything she's ever heard from someone before (aspergers or otherwise) that she felt it had enough of a relation to aspegers. She's going to speak with her colleagues on this matter in the hope that I can speak to a psychiatrist regarding this (possibly to be prescribed medication, otherwise just to chat) but also to address my ongoing depression and anxiety of which has been going on for about 5 years. I even mannaged to briefly get upset at the start of the session (grr that's getting repetitive and annoying now).

So yer that's basically my story, I'm hoping it can serve as an example for those yet to be diagnosed to perhaps follow (especially those here in the UK, as I am more familiar with the processes involved). Basically (though there may be other ways I'm not aware of) just get yourself a councillor to make the referral (you may require a GP initially to see the councillor) and then you'll get a questionairre to initially help filter out anyone who doesn't qualify. After this the wait can be very long (nearly 3 years in my case) depending on how many specialists they have local to you and how often he/she/they see people during each week.

To those who have been diagnosed already, what did you do with the knowledge and were you given extra help in any way shape or form?
 
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I'm also in the UK and was diagnosed last October, but thankfully my wait was nowhere near as long as yours. My husband had to wait about 2 years, but I think that they weren't quite as inundated when I was referred. In Cardiff, you have to see the CMHT (which in itself isn't easy) as they are the only ones who can make a referral to the autism service. I'm currently waiting for my post-diagnosis appointment, where I will be referred on to a service we have called the one stop shop. They do groups and classes, and they can also help with things like employment and benefits.

The diagnosis of aspergers has given me the understanding that there is a reason behind a lot of the things that I do (and don't do).
 
Good for you! :) I am also in the process. I was dxed in 2010 but it was one of those one hour things, and I just thought no way. I was passing so awesomely that i even had myself fooled and I was not trying to fool anyone, least of all me!

Now I can't fake and it's really apparent. So my shrink sent me to an autism clinic.

I will be at the autism clinic soon. They, too, require a family member and we had to fill out many forms (three for me and three for my parents).

The interview will be several hours. It was supposed to be last monday but we had bad weather.

Now it's Feb! Grrrrr.

I am looking forward to seeing what kind of autism I have (i.e PDD or ASD). And what services.
 
Great job seeking help for something that could be really embarrassing. Hopefully all of your care providers treat you with respect, especially since you are reaching out for support.
 
In the South West, it took me about two years of waiting to get my assessment. The people at the assessment clinic were very nice & friendly. It was worth going to but I haven't gotten any extra support from it.

I'd say (in the UK) always try and get a formal assessment. :)
 
I am from the uk, but live in France and they just refuse to accept aspergers and a seperate from autism and so, when I do get to see my psychiatrist for the first time ( never seen one before), I am going for a formal diagnosis with chronic social anxiety; that way, I hopefully will focus on that aspect, rather than, in effect pushing to diagnose aspergers; I am guilty of manipulatiing my speech in order to get a prompter; fail anyway, but has not stopped me yet. So annoying.

Anyway, so glad that your perhaps 3 year wait has come to a good conclusion for you!

I am happy to just be diagnosed with social anxiety, because that is the one that actually stunts me terribly and the one that could enable me to get a bit of financial assistance and even personal assistance to go shopping or visit the dr.
 
I'm in the UK too... I've just sent off the initial questionnaires I had sent to me from the Aspergers team from the therapy service I use.

It stated on the letter that came with the questionnaires that it is between a 8-10 month wait for assessment, and that the questionnaires were just to decide whether or not to bother continuing with the referral.
 
Congrats. Glad it went well :)
I was really lucky with my diagnosis, only had to wait about 4 months after the referral from my gp. The diagnosis process can vary a lot depending on where in the uk you live.
 
Now I can't fake and it's really apparent. So my shrink sent me to an autism clinic.

I will be at the autism clinic soon. They, too, require a family member and we had to fill out many forms (three for me and three for my parents).

The interview will be several hours. It was supposed to be last monday but we had bad weather.

You mustn't be from the UK then as this sounds like a different session and process.

I am from the uk, but live in France and they just refuse to accept aspergers and a seperate from autism and so, when I do get to see my psychiatrist for the first time ( never seen one before), I am going for a formal diagnosis with chronic social anxiety; that way, I hopefully will focus on that aspect, rather than, in effect pushing to diagnose aspergers; I am guilty of manipulatiing my speech in order to get a prompter; fail anyway, but has not stopped me yet. So annoying.

Ever thought it might be time to come back to your home country? Even though aspergers seems to be slowly being ditched now, you could still be diagnosed as having something autism related. Social anxiety (even from what I remember of you) seems to be just one of the many tree branches of problems you encounter, so I hope important things aren't left out by focusing more so on individual problems/difficulties.

It stated on the letter that came with the questionnaires that it is between a 8-10 month wait for assessment, and that the questionnaires were just to decide whether or not to bother continuing with the referral.

Hehe 8-10 months, ideal, but sadly we're all so naive (as NHS patients I mean, not aspies) and you'll probably wait over twice that time unless thimngs drastically change with the NHS. Women sadly can be harder to diagnose than men as they're better at masking some aspie traits.

I was really lucky with my diagnosis, only had to wait about 4 months after the referral from my gp. The diagnosis process can vary a lot depending on where in the uk you live.

Wow, 4 months. I had to wait about 6 just to get my preliminary questionnaire. You were indeed lucky.
 
Ever thought it might be time to come back to your home country? Even though aspergers seems to be slowly being ditched now, you could still be diagnosed as having something autism related. Social anxiety (even from what I remember of you) seems to be just one of the many tree branches of problems you encounter, so I hope important things aren't left out by focusing more so on individual problems/difficulties.

Oh if only I could move back to England! But there is no chance. So, am pretty much stuck in France and in truth, with the way things are in England, perhaps I am in a better place.
 
You mustn't be from the UK then as this sounds like a different session and process.

Not necessarily, I think the process may be different depending on where in the UK you are. I'm in the UK and for my assessment I was told it would be much easier if I could take someone with me who could answer about my early childhood, so I took my Mum. I had to fill out 2 long questionnaires before, and my husband had to fill out the exact same ones about me too. The assessment itself was just like a really long informal chat about me from birth to now, things like my academic history, my development, interaction with others etc

I didn't have to do things like come up with a story using objects like you did.
 
Oh if only I could move back to England! But there is no chance. So, am pretty much stuck in France and in truth, with the way things are in England, perhaps I am in a better place.

Not that I'm trying to undermine your position, but what is it that keeps you there in France?

Not necessarily, I think the process may be different depending on where in the UK you are. I'm in the UK and for my assessment I was told it would be much easier if I could take someone with me who could answer about my early childhood, so I took my Mum. I had to fill out 2 long questionnaires before, and my husband had to fill out the exact same ones about me too. The assessment itself was just like a really long informal chat about me from birth to now, things like my academic history, my development, interaction with others etc

I didn't have to do things like come up with a story using objects like you did.

Hmm ok yours was exactly the same as mine, it just didn't seem like it was initially. Oh and the story, basically all it was was her asking me about how I'd repond in certain scenarios to test my empathy and ability to recognise others body language etc, nothing too indepth.
 
Hmm ok yours was exactly the same as mine, it just didn't seem like it was initially. Oh and the story, basically all it was was her asking me about how I'd repond in certain scenarios to test my empathy and ability to recognise others body language etc, nothing too indepth.

Ah ok. The hardest part of mine was when he asked me to explain sayings, for example "people in glass houses shouldn't throw stones". That first moment of blind panic, and then desperately trying to find the words. I don't think I explained a single one in an actual coherent sentence :sweatsmile:
 
Not necessarily, I think the process may be different depending on where in the UK you are. I'm in the UK and for my assessment I was told it would be much easier if I could take someone with me who could answer about my early childhood, so I took my Mum. I had to fill out 2 long questionnaires before, and my husband had to fill out the exact same ones about me too. The assessment itself was just like a really long informal chat about me from birth to now, things like my academic history, my development, interaction with others etc

I didn't have to do things like come up with a story using objects like you did.
Yeah the process different depending on where you have the assessment. I had no questionnaires to fill in and didn't have to take anyone who new me in childhood, just myself. I also had two separate appointments with two different people, one for a semi-structured interview and one for the ADOS assessment, and they wrote my report together.
 
Yeah I've heard that one but don't really know what it means.

It basically means that if you're in a certain situation, you shouldn't talk badly about someone in the same situation. So, say you were convicted of speeding, you shouldn't then slag off the guy down the street for being caught speeding. You're both in the same situation, so you're in no position to judge.

If you lived in a glass house and threw a stone, obviously you'd smash the house...but I don't really understand why somebody went with that weird situation to describe what it means.
 
It basically means that if you're in a certain situation, you shouldn't talk badly about someone in the same situation. So, say you were convicted of speeding, you shouldn't then slag off the guy down the street for being caught speeding. You're both in the same situation, so you're in no position to judge.

If you lived in a glass house and threw a stone, obviously you'd smash the house...but I don't really understand why somebody went with that weird situation to describe what it means.

I prefer the similar saying 'the pot calling the kettle black'. It basically means the same thing really in regards to you being no different (in your situation) than the person you're speaking of.
 

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